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Ehlers Danlos Syndrome, MCAS, POTS, and MALS

Bones, Joints & Muscles | Last Active: Jun 12 9:01pm | Replies (46)
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@maj7499

If you need to stay in the Mayo network, Jacksonville, Florida has a EDS specialty clinic. Long way to travel but my daughter got fed up with no one understanding her complex inter-related health issues so will traveling there from Minnesota. Frustrating that we live an hour from Rochester, Mayo and they don't have anyone with an EDS specialty.

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Replies to "If you need to stay in the Mayo network, Jacksonville, Florida has a EDS specialty clinic...."
Cassie Marie | @csalter | Jun 7 4:28pm

Thank you for your reply!

I will have to see if I can get a referral there. Right now, I am rather broke from life in general, and I have thousands in medical bills due to my recent neck injections.

I would definitely go if I could afford it.

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