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Ehlers Danlos Syndrome, MCAS, POTS, and MALS

Bones, Joints & Muscles | Last Active: Jun 12 9:01pm | Replies (46)
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@csalter

There are no specialists in Rochester that work with the hypermobile types of EDS. At least, that I am aware of.

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Replies to "There are no specialists in Rochester that work with the hypermobile types of EDS. At least,..."
maj7499 | @maj7499 | Jun 7 3:33pm

If you need to stay in the Mayo network, Jacksonville, Florida has a EDS specialty clinic. Long way to travel but my daughter got fed up with no one understanding her complex inter-related health issues so will traveling there from Minnesota. Frustrating that we live an hour from Rochester, Mayo and they don't have anyone with an EDS specialty.

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