Hello!

I'm still hoping someone out there will see the comment immediately above, which I posted on March 3rd (2024). The person who had commented right before me is the only person I've heard of who was "cured" (?) of this condition, but apparently he/she is no longer following this site.

I have idiopathic camptocormia, which means I don't have any of the conditions commonly associated with camptocormia (no PD or other neurological condition, no myopathy, no myelopathy).

It's a rare and isolating condition that has led to further problems for me: bilateral carpal tunnel syndrome due to the use of canes meant to help me push myself upright. I'm a musician, so the CTS has been very difficult for me. I've recently had surgery on one hand, and the other hand will undergo the same later this month.

I long to go out walking as I used to do, but I'm bent over such that seeing ahead of me means that I'm craning my neck way back. And I feel vulnerable.

I now have a very nice U-Step upright/platform walker (that is, it has armrests enabling me to stand almost upright) for use inside, but it's too heavy and large for me to be able to take it outside or transport it.

Can anyone recommend a decent all-terrain upright/platform walker light enough that an older person could fold it and fit it into a smaller car?

Is there anyone else out there with idiopathic camptocormia?

Thanks, and best of health to anyone dealing with this.