@becsbuddy @suec147 @catartist

Thanks to everyone for sharing all this information about your experience or trials with rituximab! An amazing amount of information.

Becky, I already had the article you sent me references for, and it is a very good one from 2018. Thanks. It looks like Clippers treatment requires finding a medication regimen that needs to be changed as the condition of one's body changes. I haven't heard of anyone sticking with rituximab indefinitely, although the woman in the article was, at last report, on it for four years after the frequency of the rituximab infusions was increased from once every six months to once every four months. No update is available about whether she has stayed with the rituximab past four years (maybe one could ask the article's authors?). I guess while we hope for and pursue finding a long-term treatment regimen, we have to live with always monitoring ourselves for the emergence of new symptoms and then dealing with their impact. Yuck! But staying on the hope side as long as possible!

Sue, hope your appointment next Wednesday leads to a positive outcome for you, including the return of vision in your left eye.

Chris, I've gone through weight and muscle loss but am coming back significantly with occupational and physical therapy over he past 3-4 months. Just a few weeks ago, after a short relapse, I looked as out of shape as I've ever seen myself (women looking at me naked, instead of being impressed, would be depressed - ha), but I am getting back to normal by exercising (swam 22 laps this morning). I realize my condition is unique, but do try to get your muscles back if you can. As they say, use it or lose it.

Don