About 25 years ago, after many, many frustrating doctors visits I found a progressive doctor that recognized what was happening to me. I believe his treatment delayed anything worse from happening for decades. I was lucky as it was 25 years before I met another doctor who had heard of anything other than Lupus. Most of them were stuck in the 1950s where women imagined every symptom they had. His treatment with hydroxychloroquine (I think that's what it was called) saved me right up until I reached 74 that it all went down hill. That happened after I retired and my medication copay climbed to $100 and I couldn't afford it.