Darlindawn, you have shared your history with the right group. This forum has sensitive, intelligent, believing individuals who will not judge you but listen and offer suggestions….some may help…others not.
Your health history is complicated…with Ehlers Danlos…the inherited connective tissue disease. Most folks are not aware that connective tissue is bones, blood, cartilage and tissue that are affected. You are suffering tremendously.
You mention CT scans that revealed nodules. Has the ID doctors diagnosed anything else? NTMB? MAC?
Once you find the right team of ID & Pulmo doctores that can see your bigger picture…perhaps you will find the best treatment plan.
You are not crazy…you are ill. Reach out to this forum with questions and new developments…you will find support.

Regina