Connect
Comment receiving replies
Hi all,
I wanted to say thanks to all who have contributed to this board. It has been very educational for me since I may be forced to go on Medical Marijuana this next month.
I'm 56, have Lyme disease which manifests itself as chronic pain all over my body, Chronic pain syndrome, Bilateral peripheral Neuropathy, "fibromyalgia", and about 5 other named issues. I also recently had both full-knee replacements which has increased my peripheral neuropathy pain significantly.
I am on Social Security Disability, have 2 different neuro-stimulator implants, a combination of extended release and fast acting Hydromorphone totaling 48 mg daily, ER Gabapentin for my neuropathy, and a few others.
Unfortunately these only take care of say 60% of my pain and my new "open Market" medical insurance says they will not cover even 1/2 of the meds I am currently on. The cost of buying just one more ER Hydromorphone pill a day (I need 2-3 depending on our appeal) comes out to about $1000 out of pocket for the month.
So, even paying for medical marijuana out of pocket will save me thousands a month. Unfortunately I do not know if medical marijuana will even work or help me. I did try a large dose of OTC CBD oil with no relief. Fortunately my Pain Management Doctor does prescribe medical marijuana.
One more surprise is that since I will have been on SSDI for 2 years this summer I was notified that I will be enrolled in Medicare in June, so any part of my deductible/max out of pocket ($6,300) will be for nothing once they switch me over midyear.
Thanks again for the discussion and I will let ou know if I switch and what the results are.
Carl
Replies to "Hi all, I wanted to say thanks to all who have contributed to this board. It..."
I still have quite a few CBD capsules, do you have any recommendation on how to give it another try?
I started out trying one capsule, then went to 2, then got frustrated and went to 4.
They each contain 15 mg of CBD.
Connect
Oh my goodness. You've been and are going through SO much.
Meanwhile, just a little tidbit that may be helpful for you: With CBD oil, we each have a "sweet spot" dosage-wise depending on what our individual endocannabinoid systems required. For some people, that may be just one drop once or twice a day (yep, literally); for others, it may take a dropperful (roughly 1 ml) multiple times a day.
What I tell people who take large amounts to begin with or keep titrating up until they ARE taking massive doses is that they may be skating right past their sweet spots. If the dosage best for you, for example, is three drops twice a day, taking a "large dose" will provide absolutely no relief. Nor will one or two drops twice each day.
This is one of the most frustrating things about getting started with taking CBD oil: No one can advise anyone else what will work for them. It doesn't depend on symptoms, age, length of illness, weight...nothing that can be measured easily. It depends on what each individual's system needs.
Some may enjoy relief within fifteen minutes of taking their very first dose; others may notice absolutely nothing for a few months until ... wow ... they realize they don't hurt nearly as much as they used to. Or they aren't as anxious. Or they're sleeping better. Or their lab work is within normal limits for the first time in years (or ever). Or they haven't had a seizure in six months. The list goes on.
I don't sell it. Well, I "sell" it in that I'm like that pushy salesperson who stands between the potential customers and the door until she's SURE they've heard everything about the product that will make them soooooo happy (healthy in this case), but I don't make a dime from my "sales" efforts. I've been through what so many people with chronic pain are going through, and oh how I wish someone had presented me with the facts--with the information I now know--years ago! My life improved more than I ever thought possible before giving CBD oil a shot. And I was the biggest skeptic there was in the entire history of natural medicinal healing properties.
CBD oil can be expensive, but once you find your sweet spot, it really comes down in price once you can make your own. (And it is NOT difficult, nor does it take all kinds of specialized equipment, etc.)
Just my two cents worth. Please consider giving it another shot. The website http://www.cbdoilusersgroup.com is an essential resource, as is their Facebook page (though you have to learn everything you can on your own and not just take members' advice at face value, but that's true with anything, isn't it?).
I wish you the best, and pray you will be pleasantly surprised by relief very, very soon.