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Underwear options when lichen sclerosis flares

Autoimmune Diseases | Last Active: Jun 15 4:56pm | Replies (35)

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@triciaot

I wonder if laying down a layer of silicone gel sheeting right along the crease would protect your skin from the elastic? Silicone gel sheeting is used in burn and scar care. If it can be used to promote healthy skin on burns it would seem like it would be okay over lichen sclerosis. The sheeting is self sticking - although the friction of movement may loosen the edges. It should help keep the skin dry. There is also a silicone gel that comes in a tube - it’s put on like a cream. I don’t know if that would provide a thick enough cover to protect your skin.
Putting something like a 1 1/2” to 2” wide strip along the skin crease may interfere slightly with the seal of the elastic usually against the skin allowing some bodily fluids to escape - but maybe only a tiny amount?
Just a thought, not sure if this would work. But silicone gel sheets have been successfully used on burns and scars for many years. Looks like it can easily be bought OTC.

Here’s an article about the silicone gel sheets and gel -
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4486716/

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Replies to "I wonder if laying down a layer of silicone gel sheeting right along the crease would..."

@itchybits If you do decide to go that route, I found silicone sheeting on Amazon that worked much better than the name brand sold on the shelf in stores.

The other thought that popped into my mind is: would period underwear work for you, possibly with a liner? Those are more likely to have a boyshort design and would have less of the elastic. I’m a caregiver for my father and have seen incontinence liners for sale. The brand we use is Tena. They’re meant to give more protection, I think.

Have you considered seeing a pelvic PT about the fecal and urinary incontinence? I have the opposite problem (retention), but working with a specific pelvic PT did wonders for me and I know they also treat incontinence. It was way more helpful than anything my doctor could tell me or prescribe.

I have tried most options suggested by others...this has been the exception! I have not tried silicone gel sheeting...but will now. I have tried gels/ointments etc. Period underwear are not an option for me...they work well for mild urinary incontinence, but not an option for fecal incontinence.

Thank you Rubyslippers for the info & for including the link to the NIH.

Love & hugs to all who have replied & especially to those dealing with similar difficulties.

Thank you so much for this @triciaot !! This is a really inventive, creative idea!

I even wondered while going through the excruciating healing process from the laser ablation if there wasn't a way to cover the abladed skin of the vulva with something to reduce, if not completely remove, the extreme pain created by the urine flow? I even mentioned the idea to my gyne oncologist who did the procedure - that being the idea of some kind of protective covering that could be used at bathroom visits, but she hadn't heard of anything like that - yet. And, I must mention, she is the most consoling, compassionate and qualified doctor I have been fortunate enough to be referred to.

So, that doesn't mean it couldn't be created, esp. for a woman's vulvar anatomy, but maybe those of us who find we need something like that in the future will have to "craft" it out of a silicone sheet ourselves - just be sure to use sanitized scissors! 🙂

I will next look at your link, and also hope to see if it includes legitimate source/s for therapeutic silicone gel sheets.

Again, thank you so much! Best wishes to all, and happy to share experiences, and resources I've found along this journey.

Hello to anyone that suffers from contingence whether rectal or bladder. I had a toxic pesticide exposure in my high rise home 32 years ago. After living in the home for six months I moved. The resulting side effects were many and are ongoing issues that I now have learned to manage.
After this, I had explosive IBS in public places/ and have learned over the years how to best manage the side effects. For the rectal contingence I had a sling put in 10 years ago at the same time I put in a bladder sling. I also put in a rectal muscle stimulator. I now have replaced the first one with a new model now. This does help some but there are lots of rules you should put in place for both types of incontinence-if you have a more aggressive type.
1. See a registered dietician and someone certified in supplements.
2. Understand what medications you are taking and how they might affect these issues.
3. Understand that there are medications you can take daily that will help you with both issues. Plan your mornings near a bathroom in the morning if you tend to have loose or surprise bowel or urine issues.
4. Botox for the bladder incontinence - I see my female Urologist every three months for Botox in the bladder, I usually get five tiny pricks. This will last three or less months to help with the spastic bladder that happens when you suddenly get up from sitting down or out of bed. This does help. Medicare pays for this.