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Thank you to all who replied to me. I should have said , I do have a dermatologist, she's the one who diagnosed me with HS. I'm also in a group, and have asked if it's normal to feel the way I do, when getting a flare , and the people who had autoimmune disorders and HS , related to my symptoms.
Wow, @windyshores , those were quite some positive tests and to still be looked at and dismissed, I'm sorry. So , you made me have an ah ha moment, I guess I never thought about the severity of the disorders, and the logical order of things. Even on the beginning stagess of a disorder, i wouldnt be too much of a concern in her eyes. I will stay diligent with tracking any symptoms and try to find some answers along the way. Thank you 🙂
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@kawhortny2023 just to be clear, I have seen 3 rheumatologists over the years (first one retired) and only felt dismissed by one, who had not known me for awhile. I do have a systemic lupus diagnosis. I have been sick for days after being in the sun. I can no longer take Plaquenil or steroids so not much they can do. I don't go see a doctor when I am sick like this anymore!
The main thing remains: is there any organ damage? My kidneys suddenly got worse last fall but it does not seem to be autoimmune. That is the kind of thing that sends me back to the rheumy! And they do a check in every 6 months.
If you are dismissed, I hope you find a doctor who doesn't do that!