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Could it be MS?

Brain & Nervous System | Last Active: Jun 23 6:19pm | Replies (26)

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@windyshores

@taosmary interesting: I also have low blood cell count and high MCV. I have anemia on my record, due to kidney issues, but the symptoms I have resemble yours. Hmmm.

My doctors don't seem to notice these consistently abnormal blood tests and they are low or high enough for me to take notice. I am going to ask.

I take B12 and folate every day but tests are still off.

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Replies to "@taosmary interesting: I also have low blood cell count and high MCV. I have anemia on..."

Do you take sublingual B12? I was taking pills, but apparently not absorbing it and had to switch back to sublingual. And, at a high dose. Doctor said 1000 mcg per day! Not sure how long I’ll take that dose.

Check out the support groups on Facebook. “ Pernicious Anemia & B12 Deficiency Support” is the best one I’ve found to explain how PA works and is diagnosed. One test—intrinsic cell antibodies—showed that my guts cannot use oral B’s. They just circulate in the blood. Tests seem low normal, but symptoms persist. The only treatment is B12 injections for life, along with supplemental cofactors that allow it to be used.
I also have kidney disease, and heart and autoimmune problems, but injections help. Best wishes for you!