Has anyone tried Scrambler Therapy for neuropathy or for pain?

Posted by wisfloj @wisfloj, May 23, 2019

I have read about this device and I’m hoping someone can attest to its effectiveness for idiopathic neuropathy. I've read success stories and information online. Apparently insurance does not cover treatments, to the tune of $250 for the customary recommended 10 consecutive weekdays.

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@bettyg81pain

How much are your treatments? I was looking at what the charges were for various clinics in the Atlanta area and all of them looked like they were charging $300+ per session so is it $300 x how many sessions you go to?

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I’m paying 100.00 per session - 10 sessions total so 1,000.00 - but it’s out of town so I am responsible for lodging - WHERE did you find Scrambler Therapy in greater Atlanta? This is through a University ( SCMU) teaching hospital) and the treatment program by one of the Johns Hopkins doctors who developed the therapy and brought it to this facility so it’s legit.
If you don’t mind sharing with me where you found resources here in Atlanta ?!
I only found a disconnect # to a place ( looked like a chiropractor office in Buford)

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@norelle27

I’m paying 100.00 per session - 10 sessions total so 1,000.00 - but it’s out of town so I am responsible for lodging - WHERE did you find Scrambler Therapy in greater Atlanta? This is through a University ( SCMU) teaching hospital) and the treatment program by one of the Johns Hopkins doctors who developed the therapy and brought it to this facility so it’s legit.
If you don’t mind sharing with me where you found resources here in Atlanta ?!
I only found a disconnect # to a place ( looked like a chiropractor office in Buford)

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It was thru one of the sources that listed doctors that treated PN-can do the research for it; but, the one I called WAS around Buford and the person who answered the phone said something like "we have all of these machines here and some people say that they helped!" My reaction was-don't think I will be going there anytime soon!!! It sounds like the same type of place.
Would you please tell me all about it ie did it work for you? Did you have alot of pain before going? Were you tested to see which type of neuropathy you had? What city was it in? How far apart were the treatments? Would love to find a legitimate practice here in Atlanta.
$1000 is a small price to pay for relief!!

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@bettyg81pain

It was thru one of the sources that listed doctors that treated PN-can do the research for it; but, the one I called WAS around Buford and the person who answered the phone said something like "we have all of these machines here and some people say that they helped!" My reaction was-don't think I will be going there anytime soon!!! It sounds like the same type of place.
Would you please tell me all about it ie did it work for you? Did you have alot of pain before going? Were you tested to see which type of neuropathy you had? What city was it in? How far apart were the treatments? Would love to find a legitimate practice here in Atlanta.
$1000 is a small price to pay for relief!!

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I have contacted the doctor in the US with the most experience. It is Calmar Pain Relief in Bonita Springs, FL. Calmar is the proper name for scrambler therapy. The treatment takes 2 weeks, Monday thru Friday. The total cost is approximately $4,000. Some insurance covers it, at least partially. Mayo does offer it, however I've heard that their doctors are not as experienced, and apparently that greatly affects the outcome.

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@loralei

I have contacted the doctor in the US with the most experience. It is Calmar Pain Relief in Bonita Springs, FL. Calmar is the proper name for scrambler therapy. The treatment takes 2 weeks, Monday thru Friday. The total cost is approximately $4,000. Some insurance covers it, at least partially. Mayo does offer it, however I've heard that their doctors are not as experienced, and apparently that greatly affects the outcome.

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Have you talked with people that have had the therapy? Are you going to go there for their therapy? Please keep us updated.

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@bettyg81pain

It was thru one of the sources that listed doctors that treated PN-can do the research for it; but, the one I called WAS around Buford and the person who answered the phone said something like "we have all of these machines here and some people say that they helped!" My reaction was-don't think I will be going there anytime soon!!! It sounds like the same type of place.
Would you please tell me all about it ie did it work for you? Did you have alot of pain before going? Were you tested to see which type of neuropathy you had? What city was it in? How far apart were the treatments? Would love to find a legitimate practice here in Atlanta.
$1000 is a small price to pay for relief!!

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I’m currently getting treatment here in Charleston at a teaching hospital- MUSC -Charleston campus. The RN has special training in Scambler Therapy. She has worked with the doctor who invented this ( he’s in Bonia Springs, FL.
I pay 100.00 per treatment- sessions are 45-1 hour. Your first session is longer as they are evaluating the different frequencies and pain levels. It’s a lot of does this feel ok here and moving the electrodes around - I’m
on day 4. I think I feel a little progress. The biggest expense is lodging - Since I drove from out of state ( GA) I’m in an Abnb.
I’m doing everything to try to lessen the pain so I can return to work. I work on my feet - up to 8-10 hours a day depending upon my trips - The cabin pressure makes it worse ( swelling)
I will report back - I go home Friday - drive back to Atlanta and return Monday to complete the remainder of visits for 10 total. I wish I could have found this in Atlanta but this is legit as it’s in a hospital and she has extensive knowledge with treating this disease.

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@norelle27

I’m currently getting treatment here in Charleston at a teaching hospital- MUSC -Charleston campus. The RN has special training in Scambler Therapy. She has worked with the doctor who invented this ( he’s in Bonia Springs, FL.
I pay 100.00 per treatment- sessions are 45-1 hour. Your first session is longer as they are evaluating the different frequencies and pain levels. It’s a lot of does this feel ok here and moving the electrodes around - I’m
on day 4. I think I feel a little progress. The biggest expense is lodging - Since I drove from out of state ( GA) I’m in an Abnb.
I’m doing everything to try to lessen the pain so I can return to work. I work on my feet - up to 8-10 hours a day depending upon my trips - The cabin pressure makes it worse ( swelling)
I will report back - I go home Friday - drive back to Atlanta and return Monday to complete the remainder of visits for 10 total. I wish I could have found this in Atlanta but this is legit as it’s in a hospital and she has extensive knowledge with treating this disease.

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Wow, do I want to keep in touch with you!! IS IT HELPING with the pain?? I live in Atlanta also-I have not found a doctor that really knows anything about the Scrambler? Did you have an (is it called a ENG?) before having the Scrambler Treatment?

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John - Have you done any research on Scrambler Therapy or Calmar Pain Therapy? What about surgical nerve decompression?

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@lorirenee1

Saw this on the mayo clinic site. It is an abbreviation for a device that scrambles messages to the brain and interferes with getting neuropathic pain. Has anyone tried it? I do have a pain clinic in Illinois that uses it, but I am wondering if it actually works to stop pain.

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I had a prelinary evaluation and 1/2 hr treatment in Chandler AZ. I think I saw improvement, but could not follow through because I was headed out of AZ for Summer. Could not find a provider in MT. Unrelated back pain forced me to a chiropractor here in MT for Back pain and his speciality of treating Neuropathy with a: Rebuilder (beefed up tens unit), Red light Therapy, and a host of supplements and office visits. After 4 days uncertain as to results. I posted a longer message on another message board on this Mayo Site.

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@norelle27

I’m currently getting treatment here in Charleston at a teaching hospital- MUSC -Charleston campus. The RN has special training in Scambler Therapy. She has worked with the doctor who invented this ( he’s in Bonia Springs, FL.
I pay 100.00 per treatment- sessions are 45-1 hour. Your first session is longer as they are evaluating the different frequencies and pain levels. It’s a lot of does this feel ok here and moving the electrodes around - I’m
on day 4. I think I feel a little progress. The biggest expense is lodging - Since I drove from out of state ( GA) I’m in an Abnb.
I’m doing everything to try to lessen the pain so I can return to work. I work on my feet - up to 8-10 hours a day depending upon my trips - The cabin pressure makes it worse ( swelling)
I will report back - I go home Friday - drive back to Atlanta and return Monday to complete the remainder of visits for 10 total. I wish I could have found this in Atlanta but this is legit as it’s in a hospital and she has extensive knowledge with treating this disease.

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My understanding is that Scrambler Therapy is the US marketing name for Calmare which was invented by a doctor in Rome.

It is difficult to find providers. But I believe it does have promise.

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@loralei

I have contacted the doctor in the US with the most experience. It is Calmar Pain Relief in Bonita Springs, FL. Calmar is the proper name for scrambler therapy. The treatment takes 2 weeks, Monday thru Friday. The total cost is approximately $4,000. Some insurance covers it, at least partially. Mayo does offer it, however I've heard that their doctors are not as experienced, and apparently that greatly affects the outcome.

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Mayo would not see me because they didn't like my UHC Medicare Advantage (PPO). They said even if I changerd my insurance they still might not be willing to treat me. They seem to have teams that decide what patients to accept.

I used to be a patient at Mayo when I was working for a corporation and had slightly different insurance. I believe thye like to charge more than normal insurance will cover, in other words they want a premium. I know many people who are able to go to May for a variety of conditions. Its unfortunate that this renown institution is not available to all people with a reaonable level of insurance. I observed from my prior treatment with them, for me and my mother, that they are not infallible.

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