I have been through this also, and I think what happens is the medical professionals see you and the family coping and getting by, and they figure they have patients with more urgent needs to attend to. I had to reach out to groups like Alzheimer's Association, Dept of Aging, read books, go online, join these forums, call Alzheimer's help line, go to seminars, attend caregiver support meetings, get pastoral counseling, etc. And I had to learn to accept that family members would "distance" gradually as they became uncomfortable seeing their loved one's personality and cognitive abilities change. It's a rough and rocky road, for sure.