Hi, I'm here! Thanks for pinging me Becky. I'm just back from 4 weeks of traveling, averaging 10k steps per day - whew! I am doing great, my next Ruxience infusion is in early July. Pro Tip: if you're getting infusions every six months, don't do them in June & December. Why? December is crazy busy with people needing to get their appointments in within the insurance calendar year. MUCH better to get on a January/July schedule. I also have A LOT to say about saving money on infusions, I'll gather that info for a post in the coming weeks.
In the meantime , I'll parse through things and catch up, I'm happy to answer anyone's questions any time.

Hello, I have been working my tail off to get back to walking and talking normally. I'm on average hitting 5 miles a day walking. considering April 20th i was admitted to the ER barley walking and had slurred speech. i did 5 days of IV steroids. I'm now on 50mg of oral steroid. On Monday I will see my nuerologist. (DR. Rabin in AZ ) I will start the weaning process. i have passed my pet scan, spinal tap and MRI. will get the results of the MRI monday also. I have not decided or spoke to the DR. yet about the steroid sparing agent. Bill crum has been on his for over 12 years, so theres some good data on that one. I will keep you all posted. also i hope everyone else is crushing it! we aren't in the ground yet!! stay strong everyone!!