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Autoimmune Diseases | Last Active: 2 days ago | Replies (308)Comment receiving replies
@catartist Yes, I can't get off prednisone. I just had a relapse and am now back up to 20mg daily. It is hard. It intensifies my tingling/pain, but also helps the pain. My muscles in my legs and glutes seem to be the first of the muscle wasting. My strength has gone too. Rituxan gave me really, really bad mood swings. It was to the point my poor husband would come home from work and take a few minutes in the truck before coming into the house. My dr took me off it right away. I never tried methotrexate. What is that used for?
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Methotrexate is a first go to with RA ( only my liver wouldn’t let me 30 years ago - I can tolerate it now!?). It’s a disease modifying drug ( like hydroxicloriquim ) supposed to slow it - did well for years but ‘they’ decided I’d been on it long enough. Metho. Is strong med but I have had no side effects( that I didn’t already have!). I am on biological Orencia too ( only safe one for me). But addicted to pres. Apparently. Never warned about this 49 years ago when started for asthma !! U asked!! ( asthma broke out the RA once while in hospital for 4 days. Goody!
Any tips on muscle wasting from your Drs? I do PT and attempt to walk with sitable walker outside now that it’s nice. But little energy - can’t go long or far.
I am getting back to stationary bike and upper arm movements . Both rotator cuffs are damaged sore and weak so PT on those too. YOU ?
I am missing all gluts except the Maximus so need my arms. ( hands have had muscle loss for years ). YOU?