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Help with understanding test results
Autoimmune Diseases | Last Active: 5 days ago | Replies (79)Comment receiving replies
@slkanowitz Thanks Your summary is much appreciated and helps make my first appoint with the Rheumatologist less overwhelming. I am copying my test results from over the years to take with me, as well as a typed list of symptoms (even the strange ones). He may be able to recommend an allergist/immunologist and a new pulmonologist. I already have an ENT (that I adore) and I saw a dermatologist once.
Replies to "@slkanowitz Thanks Your summary is much appreciated and helps make my first appoint with the Rheumatologist..."
i have both a superb pulmonogist and an excellent and compassionate allergist/immunologist. however all the rheumatologists have asked me why i’m
there. i have multiple autoimmune conditions but they are treated by my allergist/immunologist and my pulmonologist.
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@rebaba
I wish you the best getting answers. I have a new rheumatologist appointment early July and searching for answers for 8 years. I have been through a couple rheumatologists that were not very helpful. I had autoantibodies show up 2 separate times 2 years apart for Hashimoto’s thyroiditis, SLE and Antiphospolipin Syndrome (APS) which is tied to blood clotting risk. The first Rheumatologist said nothing to me about these autoantibodies and I only noticed them more recently. My second rheumatologist didn’t do really extensive testing like the first and sent me away with nothing (was a waste of time and money). My new neurologist seemed very concerned about my untreated APS and referred me to a new rheumatologist. I am being treated for Hashimoto’s hypothyroidism now but took removal of thyroid lobe /nodule and pathology to finally get officially diagnosed.
I also have chronic fatigue plus many other issues including lung. Have you ever had COVID vaccines or the viral infection? I had both and ever since, I have worsening breathing problems. It is hard to take in deep breaths and now have sleep apnea. My sinuses also seem constantly inflamed so it is hard to get enough oxygen only breathing through my nose. My APS plus COVID makes me think I am dealing with micro vascular/endothelial cell damage from micro blood clotting which is affecting my oxygen exchange from lungs to heart/cardiovascular system and muscles which makes me extremely fatigued.