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Has anyone experienced edema in their ankles and feet? I
Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (23)Comment receiving replies
Hello @robgone, Welcome to Connect. I've had PMR flare ups twice but it's now in remission. I've also been diagnosed with lymphedema in my legs (mostly the right leg) but it's not associated with my PMR as far as I know. From what I've read your experience is not uncommon.
"Some patients develop swelling or fluid retention (oedema) of the hands, wrists, ankles and top of the feet."
-- https://www.vasculitis.org.uk/about-vasculitis/polymyalgia-rheumatica
8 months seems like a long time to deal with PMR symptoms with only using Advil intermittently for pain.
Have you started any treatment for PMR other than trying to control the pain using Advil? Have you seen a rheumatologist?
Replies to "Hello @robgone, Welcome to Connect. I've had PMR flare ups twice but it's now in remission...."
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Thanks very much for your reply and your concern. Yes, I have seen a rheumatologist who said the course of treatment is prednisone for one year or possibly more. I did not want to go on prednisone because of its effects on your bones and kidneys at a minimum. I’ve been trying acupuncture and massage therapy in the past two months with not much relief. I now have much more experienced acupuncturist that says she can eliminate the pathogen that is causing my problems, hopefully within afford of five week time span. If that doesn’t work, I guess I will have to give and take the prednisone.