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Grade 1 Non-functioning (NF) NET

Neuroendocrine Tumors (NETs) | Last Active: Jun 11 1:56pm | Replies (45)

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@matt2024

Hi @hopeful33250 - nice to meet you. I am doing well. Most days are good - some are challenging but isn't that the truth about life in general. 🙂 I will use enzymes for the rest of my life - I use 3 x 36,000 Creon with meals and one with snacks. Aside from being expensive (my first 90 day fill was $2,700 before I hit my deductible), they really haven't created any problem for me. I am consistently in the mid 6's for A1C and attribute that to diet, exercise and my CGM/pump combo. The biggest thing for me is to factor in carbs, fat content, and insulin and time it right. It's a bit of an art form but can be managed. Highs I knock down on the elliptical and lows I use juice for a quick boost.

I was devastated when I learned of the pNets but looking back (thought I was a goner), I took it one day at a time and let the doctors help me manage it.

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Replies to "Hi @hopeful33250 - nice to meet you. I am doing well. Most days are good -..."

Hello @mat2024,

It sounds as if you have developed a really healthy lifestyle to keep the blood sugar in check. Your attitude has undoubtedly helped you.

I appreciate your encouraging words; it really does help others who are feeling overwhelmed.