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@dadcue

Because of traveling, I had my Actemra infusion yesterday after 7 weeks instead of 4 weeks. My CRP and ESR were checked prior to my Actemra infusion. While my pain wasn't that significant, my inflammatory markers were elevated. My inflammatory markers went from "negligible" to "significantly elevated" according to my rheumatologist --- the first increase in a couple of years.

I was never sure why we were still checking my inflammatory markers, Supposedly they aren't reliable when a person is on Actemra. My rheumatologist said my inflammation markers are still an indicator when something isn't right or when Actemra isn't working for some reason.

When I asked if I still needed Actemra ... my rheumatologist said based on my inflammation markers .... I still need Actemra. My rheumatologist asked me why I would want to stop Actemra. I didn't have any reason to stop Actemra other than to see what might happen. My rheumatologist said he could probably predict what would happen if we stopped Actemra.

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Replies to "Because of traveling, I had my Actemra infusion yesterday after 7 weeks instead of 4 weeks...."

Similar to my discussion with the Rheumy. I only get blood work with him twice a year now. Seems like medicare has delivered some kind of inspiration to limit testing of all kinds. He has fought them on medication approvals before so he’s not just after the gold star. But my values have been pretty steady. He will pull them in a flare but otherwise only what some other doc hasn't pulled in the last year.

I get it. Don’t we all wonder what our baseline pain level is? Or, what if we eliminated a med?