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@sallylynn

Hello Ginger. May I ask please if you ever had the Cystatin C test? I have been reading about it. I'd be a liar if I said I wasn't scared. IF I didn't have this intermittent achy/ neuropathy in my feet and hands I probably wouldn't be as scared. I feel a lot anger and fear right now Ginger. I am angry because all for I know my eGFR has been hovering in the 40's for months and that is why I possibly have symptoms now! I was denied a blood test to check how my kidneys were functioning! Actually ENT sent a referral to her for a BMP and no response & then my gastrologist as well, which was ignored! I could have gotten off my meds after a couple months being on them! Yes, I am livid. Very livid! And yes, the Administration at my Clinic received a complaint from me. I want **** reprimanded. ~ My new PCP right off the bat was pro active, however, Administration is now involved in my situation so they may have had a say about the nephrologist and that is why I had a swift referral, but I pray my new PCP will be on top of the game. I am just...devastated. 🙁

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Replies to "Hello Ginger. May I ask please if you ever had the Cystatin C test? I have..."

@sallylynn No, I never have had a Cystatin C test for eGFR. My insurance will not cover it. Being a kidney disease patient for over 20 years, my medical team and I found the standard test to be sufficient for my situation, without the added cost.
Ginger