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CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: 2 days ago | Replies (308)Comment receiving replies
@don Hi this is Sue and I tried Rituximab and, unfortunately, it did not work. I was on this while still on steroids. My Neurologist will not take me off steroids. Every time I drop to 10mg or 5mg, I relapse.
Replies to "@Don Hi this is Sue and I tried Rituximab and, unfortunately, it did not work. I..."
Yes - I am like that - stuck at 5. Less and I curl up into ball of pain. Great choice - between horrid pain and possibly stopping further muscle myopathy anywhere. - probably too late anyway (78). addiction they say . Sorry you have this need to - saves you, then probably kills you. But I had 35 very active great years ( always some pain!).
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@suec147 same with me. I have trouble going lower than 3mg. I also failed on my first try with rituxan. It was just wonderful for the first year, but then……I’m trying it again (after 4 years) and it’s doing ok!