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Help with understanding test results

Autoimmune Diseases | Last Active: Jun 29 6:13pm | Replies (79)

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@rebaba

@windyshores Read about the eosinophilic esophagitis and it sounds like no fun! I don't think I have environmental, food or medicine allergies-last testing showed stuff like Gherman cockroaches, cedar, etc.. A pulmonologist described it as more of an "overreactive immune system" problem, but nothing more exact.

Thanks for providing the description of how sunlight affects you so poorly. I've been covering up, for so long, anytime I go out in the summer, that I can't honestly recall the "after-effects"-just know it's bad and that beaches (and boats) are to be avoided at all costs). It is embarrassing because I feel like a bat or vampire.

I am going to check into getting an integrative medicine doctor. I really don't want to take any more prednisone!!! One ENT had me on so much, for so long, that I started getting out of bed in the middle of the night to eat - it was horrendously scary.

Thankfully, the Breo is beginning to get the inflammation in my lungs quieted down so, I may be able to address more of the fatigue issues with the Pulmonologist next week. The lung inflammation feels like a crisis (acute); whereas the fatigue feels chronic. Thanks for having someone to talk with about-that helps too.

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Replies to "@windyshores Read about the eosinophilic esophagitis and it sounds like no fun! I don't think I..."

Prednisone is tough to handle and affects bones too. I got my mother down to a low dose rather than doing frequent high doses with taper.

Glad the Breo is helping! Hope the pulmonologist is both understanding and helpful.