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Help with understanding test results
Autoimmune Diseases | Last Active: Jun 29 6:13pm | Replies (79)Comment receiving replies
@rebaba I also may have eosinophilic esophagitis and with your eosinophil count, that might be something to look into. I am sensitive to many foods, medicines and environmental things (rugs, paint, laminate flooring, scents, cleaning products etc.). It creates lung pain and shortness of breath, headache, odd sensations etc.
In the sun around this time of year: the sun actually feels like it is burning my skin in the moment. The next day I wake up with diarrhea, headache, lung pain, dizziness, tingling, fluish in a way that is hard to describe.
You may be right about my cousin with the possibility of IgE. I'll ask her!
Many of these ailments have no clear answer or diagnosis. I am actually lucky to have a diagnosis. I also go to an integrative medicine doctor because I cannot tolerate steroids (afib) or Plaquenil (after years it affected my eyes). I am trying Curcumin as a first step as well as liposomal glutathione. CBD made me dizzy. I have one more thing to add for inflammation. I also take magnesium.
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@windyshores Read about the eosinophilic esophagitis and it sounds like no fun! I don't think I have environmental, food or medicine allergies-last testing showed stuff like Gherman cockroaches, cedar, etc.. A pulmonologist described it as more of an "overreactive immune system" problem, but nothing more exact.
Thanks for providing the description of how sunlight affects you so poorly. I've been covering up, for so long, anytime I go out in the summer, that I can't honestly recall the "after-effects"-just know it's bad and that beaches (and boats) are to be avoided at all costs). It is embarrassing because I feel like a bat or vampire.
I am going to check into getting an integrative medicine doctor. I really don't want to take any more prednisone!!! One ENT had me on so much, for so long, that I started getting out of bed in the middle of the night to eat - it was horrendously scary.
Thankfully, the Breo is beginning to get the inflammation in my lungs quieted down so, I may be able to address more of the fatigue issues with the Pulmonologist next week. The lung inflammation feels like a crisis (acute); whereas the fatigue feels chronic. Thanks for having someone to talk with about-that helps too.