PN: Current research?

Posted by Ray Kemble @ray666, Jun 26, 2023

Hi!

Is anyone following recent research on PN? I've checked, and although I've found lists of clinical trials, most are over or have closed due to a lack of funding. Yesterday's NYT had an interesting article about the high hopes placed on Crispr research. A dozen maladies were mentioned as possible beneficiaries in the coming years (and decades), but not PN. Have any of you read any recent promising research stories?

Ray (@ray666)

Interested in more discussions like this? Go to the Neuropathy Support Group.

I haven't come across any recent promising research specifically on PN. It's unfortunate that funding issues are affecting progress in this area. Crispr's potential is indeed exciting!

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@james393

I haven't come across any recent promising research specifically on PN. It's unfortunate that funding issues are affecting progress in this area. Crispr's potential is indeed exciting!

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Welcome @james393, I myself am not too excited for CRISPR but it may hold hope for some.
-- Is CRISPR Worth the Risk?: https://insights.som.yale.edu/insights/is-crispr-worth-the-risk

I did see this newer research reference on the Foundation for Peripheral Neuropathy site that sounds like CRISPR is involved - Newly Funded Research: A Novel miR-155 Therapy for the Treatment of Peripheral Neuropathy: https://www.foundationforpn.org/newly-funded-research-a-novel-mir-155-therapy-for-the-treatment-of-peripheral-neuropathy/

Have you been diagnosed with peripheral neuropathy?

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I have PN of the feet.Today my feet are on fire. I’ve stopped taking most supplements because of the cost. What do most people take for burning feet

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@bigjohnscho

I have PN of the feet.Today my feet are on fire. I’ve stopped taking most supplements because of the cost. What do most people take for burning feet

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When my feet burn, I use an ice pack. (Or put feet in cool water )Also, I’ve read where alcohol can exacerbate the burning. Usually when I go out to eat I have 1 drink. I’ve stopped. Can’t say I’ve found d a big difference. I also read gluten can worsen NP. Salt also…no chips, cold cuts, etc.
I’m trying everything. Figure it worth a try! Also trying to drink the recommended 8 8oz glasses of water a day

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@bigjohnscho

I have PN of the feet.Today my feet are on fire. I’ve stopped taking most supplements because of the cost. What do most people take for burning feet

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R-Alpha Lipoic Acid helped the burning in my feet and so did Low Dose Naltrexone

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@daj3333

R-Alpha Lipoic Acid helped the burning in my feet and so did Low Dose Naltrexone

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What dosages did you take

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300 mg R-ALA twice daily and 3 mg LDN.

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@daj3333

300 mg R-ALA twice daily and 3 mg LDN.

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Is R-ALA just for diabetic PN

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@daj3333

My PN is not diabetic

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Do you get any side effects from the R-ALA

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