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DiscussionNebuliser suitable for saline and powdered glutathione
MAC & Bronchiectasis | Last Active: Jun 6 3:00pm | Replies (17)Comment receiving replies
Replies to "Hello Nancy, One thing I have learned in researching these pocket unit is that there is..."
Hi Sue. Thanks for your feedback. I'm new to all this and just finding my way. I'm 69 and was accidentally diagnosed with BE in late January, with confirmed MAC and aspergillus cultures in mid-April. I had/have no symptoms with the exception of an occasional but consistent dry chronic cough that I've had for a long time (and previously was attributed to silent GERD).
I have not yet started the Big 3 antibiotics, but expect to do so within the next few weeks. I have been nebulizing with 3% saline for last 2-3 weeks (alternating between 1-2x/day), but bring up very little mucus, and frankly find myself coughing more now. I also just purchased the Aerobika (which should arrive today). I bought the lifestraw jug, which I use to wash the nebulizer parts, and drink spring water. I've eliminated ice from my drinks when I'm out, and have special ice cube trays with lifestraw filtered water at home. I'm still trying to figure out showers etc. All the issues around water have my head spinning.
I have spent a lot of time on this group, on various webinars, YouTube videos, the recent patient conference, etc ... trying to educate myself (your posts and links have been very helpful).
Regarding the Pocket Neb, I spoke with them yesterday. The mouth piece is plastic and can be washed/sterilized. The medical cup requires just distilled water due to the delicate nature of the mesh, but is replaceable. Since distilled water has been previously boiled, why is that a problem? I'm not sure that I fully understand the issue - perhaps because I'm so early in my journey, and fortunately, not as yet, experiencing any of the devastating issues that have been shared within the various blogs. Your further guidance would be greatly appreciate.