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Struggling with Tymlos medicine

Osteoporosis & Bone Health | Last Active: Jun 4 11:47pm | Replies (90)

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@maurkenn

I have been reading through this and it has been very helpful. I started on Tymlos about 1.5 weeks ago - started full dose. Going along ok until I had some chills one night, didn't think much about it, but the next night terrible shaking chills. It is not a known side effect but I stopped then. I have been trying to reach my Dr for days now. Hoping to talk to her and maybe go to the smaller dose to start. Since I'm going to guess I may be educating her on the smaller doses - think half dose to start or should I start lower? (I did have minor headache and faster HR during the first week, but then would fall asleep and fine in the morning) Thanks!

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Replies to "I have been reading through this and it has been very helpful. I started on Tymlos..."

@maurkenn my personal experience was that at first I could not tolerate the full dose, or the half dose for that matter. I went down to 1/4 dose (two clicks of the pen) and worked up from there, slowly, as tolerated. I eventually finished two years with mostly 7 clicks, 7/8 of a dose. So it is possible you can tolerate Tymlos over time.

My doc didn't suggest this but was happy that I got onto the medicine in whatever way I could. He told me he now uses this ramping up method in his practice. Maybe you could try that on your own and if you can tolerate 1/4 dose, discuss with your doctor.