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CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)Comment receiving replies
Hi Becky,
How has your treatment with rituximab infusions gone so far? Do you have a schedule of infusions going into the future? Did you need to go off prednisone to get started with it, and if so how did that go? Have you begun an accompanying medication to go with the infusions? Pardon all the questions! I ask because my neurologist has been talking for a month or two of this as a possibility for myself. I think she wants to get me stabilized on steroids before trying rituxcimab. You are the only person I've encountered who has gone this route. I guess it is relatively new.
Don
Replies to "@becsbuddy Hi Becky, How has your treatment with rituximab infusions gone so far? Do you have..."
@don Hi this is Sue and I tried Rituximab and, unfortunately, it did not work. I was on this while still on steroids. My Neurologist will not take me off steroids. Every time I drop to 10mg or 5mg, I relapse.
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@donnyboy Well, I’ve only had 1 infusion so far. Usual is to gives 2 doses 2 weeks apart and then repeat every 6 months. I had all that about 5 years ago and then had to stop rituxan. My next dose is Aug 7. I’m also on CellCept, which is a steroid sparing drug, does all the same as steroids without the bad side effects. And, no, I didn’t need to stop steroids to start rituxan. I’v had a real problem stopping them. The infusion usually takes about 3 hours because i ask the nurses to go slow. I have an article on rituxan that I’ll try to find.
Becky