← Return to Pancreatic Cancer Group: Introduce yourself and connect with others

Discussion

Pancreatic Cancer Group: Introduce yourself and connect with others

Pancreatic Cancer | Last Active: 3 hours ago | Replies (1293)
Comment receiving replies
@gamaryanne

Thank you! I had a spot in the Revolution Medicine 9805 trial but lost it due to not enough “measurable disease”. I am told it is the most favorable just now. Was hoping there was something available outside of trials. Always looking and preparing for the reoccurrence.

Jump to this post

Replies to "Thank you! I had a spot in the Revolution Medicine 9805 trial but lost it due..."
markymarkfl | @markymarkfl | Jun 4 12:53pm

I think it was RevMed that had a section about expanded access on their web page that said they didn't provide that sort of program; they want all use to be part of a clinical trial.

There might be something available to you in the Elicio drug AMPLIFY trials. I hope so!

That is so frustrating about "measurable disease." It's not described clearly enough in any of the trial posts. I learned the real criteria for that means measurable on that institution's equipment and big enough to see a change if it happens.

I was in a similar boat with tumors meeting the trial's 1 cm criteria on another institution's MRI but only appearing as 0.9 cm on the trial center's CT. You're in that limbo of hoping your disease gets bad enough to qualify for the trial, but not so bad you go past the point of no return. Nerve-wracking to say the least!

Hang in there; wishing you the best!

VIEW AND REPLY