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Thanks Tony. Ditto!
Comparison is the thief of joy.
We all here have been thru it right? The ones who do well don't come here. So when I go to a site about CRPS, I know I'm hearing the worse case senarios and then I see a parent of a 13 yo thinking we are average. I'm always there to tell the parents there is hope. There is treatment when first diagnosed. Its true, a dr put a SCS in a teen like 3 months into her dx. There's no place to go from there.
I do take LDN (low dose naltrexone - very different than the 50mg people take coming off drugs - if you've never heard of it. Its an antiinflammatory but you can't take it with any opioids do clearly not near surgery. Its also a very long treatment. Life for me and many. There is quite a bit about it here if you need more info.
I am looking at the 3 week Mayo Pain rehab mostly because they don't do test to diagnose or try to treat.
I just need to be able to cope better - until my hip of course which I do want diagnosed. If its my back, ill learn to live with it. One doc says fusion but at almost 70, living alone, medicare doesn't really pay for much except a bath. And a fusion can fix the instability but already so much scar tissue I don't know it would do that much and it would have to be from L2-S1. Too much. I ned to improve my coping again. I hear tho that some go to the Mayo PRC in a chair and walk out 3 weeks later. A lot of work but I'm game!
I recently bought a wheelchair and trying (don't want to!) adjust. My age is catching up and some of us have an early start huh? When is your surgery? Are you alone, married, kids nearby?
Till later, betty
Replies to "Thanks Tony. Ditto! Comparison is the thief of joy. We all here have been thru it..."
I’m fortunate and blessed with a healthy wife 76, 52 years married.
I have requested a date for surgery and am waiting to hear.
Working on exercises to strengthen the core.
Need a EMG for carpel tunnel on left hand, next.
Be well and keep the faith you are in my prayers.
Tony
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@bebold
I am 54, a single parent of an 14 year old son and his sole provider, no child support and lost my job last summer. I also live alone with my son and have no family. I have cervical and lumbar stenosis (severe congenital) and had ACDF surgery and holding off as long as possible for lumbar surgery by getting steroid injections. Still in lots of pain despite multiple injections and only taking 100 mg Gabapentin at night, 150 mg bupropion for depression and 100 mcg levothyroxine for Hashimoto’s hypothyroidism. I also have severe pain in hips/buttocks/hip flexors and awaiting my MRI results (had MRI of hips/pelvis last week and this is the first for me; I have had lots of spine and brain MRIs). My pain makes it hard to walk, lift legs, bear weight, sit, etc. my thought is I may have sacroilitis and something wrong with my hamstring connection to my right ischial tuberosity (sit bone). I have had a CT scan show inflammation of the sit bone in 2019 but doctors ignored many of my CT/MRI results (including my flattened spinal cord in my cervical spine causing many problems below C5C6). Similar to you, I have a trauma childhood and have had bad experiences with many doctors and the healthcare system. I worked in healthcare/insurance but was not a provider/healthcare worker but behind the scenes in management and I did not like what I saw/heard. Healthcare as a for profit business is terrible for patients.