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CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: 3 days ago | Replies (216)Comment receiving replies
@suec147 You are in the Clippers group! You can read what others have said by going to the top of this page of comments and tapping on ‘First’ on the line of page numbers (see the photo). There is a wealth of information in this group!
It sounds like you’ve had a difficult time. Are you seeing a neurologist?
Since you have been on steroids for a long time, you may want to add an endochrinologist to your list of doctors. They can follow you for bone health since steroids cause great trouble for your bones.
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@becsbuddy Hi Becky, it is Sue, Thank you for the guidance. I do have a Neurologist, who is excellent 🙂 and I also have an endrochrinologist, plus many others 🙂
I am in the process of recovery from a relapse, which attacked my left eye for the 2nd time.
I am blind in the right eye. It attacked my right eye 4 times in a row and the eye finally couldn't take any more inflammation. It's been about 2 years for the blindness.
I see my Nero Optomologist 6/12 and I am hoping they are willing to decrease me to at least 15mg.
Hope you are having a good day!
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Daily steroids every day cause muscle atrophy after years too. I am suffering from that now and lost shoulder and glute muscles - like a popped balloon! Hard to walk ( can’t get off steroids - too much pain -RA 35 years). Try NOT to be on steroids like this. No cure-