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Bladder Cancer Group: Introduce yourself and connect with others

Bladder Cancer | Last Active: 4 days ago | Replies (49)
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@steenrl

I was diagnosed with bladder cancer about 4 years ago and tried to beat it with multiple Turbt, chemo and BCG but couldn't get rid of it. Never had muscle involvement but decided I needed to have the bladder removed. I was under the care of Mayo and I decided I wanted a neo bladder procedure. Best decision I ever made. Two years post surgery and everything is good.
Anyone thinking about a neo bladder, please reach out.

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Replies to "I was diagnosed with bladder cancer about 4 years ago and tried to beat it with..."
jcold5619 | @jcold5619 | Jun 13 7:16am

I’m glad you are doing well.

Kind of an off the wall question but thought I would throw it out there to see if anyone could answer.

Does Medicare cover the cost of a Neobladder procedure ?

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Colleen Young, Connect Director | @colleenyoung | Jun 15 9:57am

@steenrl, Hi Robert and welcome. Good to hear about the success of your neobladder. I wonder if you might wish to share more about your experience, what to expect and what you wished you had known in this related discussion:

- Experiences with neobladder surgery for bladder cancer
https://connect.mayoclinic.org/discussion/bladder-cancer-and-neobladder-surgery/

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schew5515 | @schew5515 | 6 days ago

We will meet with Dr to discuss treatment. Slightly worried the Dr mentioned the reading was unusual. Not sure how to take this. He did say it is not invasive but originally first Dr not at Mayo said it was low grade. Now Mayo said it is high grade.

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