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← Return to First TYMLOS dose completed - 2 year journey begins
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First TYMLOS dose completed - 2 year journey begins
Osteoporosis & Bone Health | Last Active: Jun 13 5:40am | Replies (20)Comment receiving replies
Dear Community - I wanted to update this group on my TYMLOS progress after 10 injections at full strength (8 clicks). I have side effects I don't hear others mentioning. I get no immediate reaction, of which I am very grateful, but I do get a dull headache almost immediately followed by a loopy foggy feeling that lasts almost until the next injection, so from 8p - 7p the following evening. It is not improving, so I suspect this is my reaction to manage. I can handle this for sure - I work from home and can manage my activities to avoid driving, etc, but I am hoping if someone else had this, they can rely their experiences and let me know if it improved over time. Thank you!
Replies to "Dear Community - I wanted to update this group on my TYMLOS progress after 10 injections..."
@esb13 I was just wondering how you are feeling? Have your side effects subsided?
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It seems we are all different in responding to Tymlos injections. I started at the full dose of 8 clicks and am now in my second year with minimal side effects. I sometimes feel my heart racing after an injection. The very first few weeks I had a slight backache, but not since.
I had a bone density test after the first year and it showed such improvement that I knew it was a mistake. I went from -5.1 to -3.7--ha! Impossible. I thought the mistake was from the radiologist reading the test wrong, but talked to Dr. Keith McCormick (he is in MA, but consults with patients all over the country) and he said it was likely from how the technician placed me on the table--something about the grid lines. Anyway, the spine results were worthless, but I did have improvement in the hips and forearm, so it appears to be helping. I continue on Tymlos and am hoping for results I can believe next time.