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CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: 2 days ago | Replies (308)Comment receiving replies
@suec147 @becsbuddy
Sue, I'm Don and am glad to see you join the discussions about Clippers. I am also on steroids, 20 mg/day now, and trying to find the right level of steroids as I've had several changes that haven't been associated with good results. Just got over 10-12 days of really bad hiccups, some days 24x7. What I suggest for you is to tell us more about your status with treatment and how it is going. I need to break for today but will look to hear more from you. It isn't easy figuring out how to use Mayo Clinic Connect, but it is worth making the effort. I need to improve on this as well!
Replies to "@suec147 @becsbuddy Sue, I'm Don and am glad to see you join the discussions about Clippers...."
@becsbuddy U am new. So sorry. How or what do I look for to find this group?
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@ Don thank you for responding. I am new to this. I was diagnosed in March of 3017. I have been on so many medications, none of which worked. Currently on 20mg daily of steroids and a monthly iggIVIG infusion. I was on 10mg steroids with IVIG and I had another relapse in my eye. My right eye is blind due to a relapse.
Every day is a challenge. I just fell on Saturday. My head hit the cement (front of head) nose , wrist, elbow and knee bruised. The stiffness from the steroids did not let my legs move.
Oh I also try to not sway from my diet. When I do it is never good.
Sue