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@marymckeith

I hope someone can help me. I can't see my doctor for three weeks. I am on 5 mg of prednisone and experiencing EXTREME weakness. The magnitude of it scares me. I want to get off Prednisone so I don't want to up dose but in the meantime I am turning into a vegetable. I don’t want to live like this. My life is essentially over. I have been to the emergency room and everything checks out except slight dehydration and should eat more. What should I do? Decrease prednisone to get adrenals working again and face consequences. I know all about cortisol levels and adrenals. This horrible debilitating weakness is ruining my life. I don't look sick but am really suffering as I don't know what to do.

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Replies to "I hope someone can help me. I can't see my doctor for three weeks. I am..."

These social media sites are more to help exchange information. What we all have found is we are all different and different approaches work completely different between us. I have been here for 2 weeks and gained so much knowledge from this group. But probably none of us are equipped to say one thing vs another is the right approach. The medical field has just as much trouble with that. A medical team would have all your history and how much prednisone you have been on. How long you have been fighting PMR. Lots of information that leads them to a helpful answer. Here is what seems obvious to me. You are not ready to feel this devastated from the taper of prednisone. Cortisol production is life saving requirement for the human body. Your body has to have it. It could be very dangerous. If you were feeling better at a higher dose then I would go back to that dose. Go higher if you have to. Wherever your feeling more yourself. As they say "rome wasnt built in a day". I think you have a grasp of cortisol and how it works. So basically I do not think your ready to lower your prednisone dose even farther at this point. I would go back to emergency and continue to seek medical help if necessary.