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CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: 3 days ago | Replies (216)Comment receiving replies
@suec147. Hi, Sue. I’m Becky and I started this discussion. I also have Clippers, diagnosed in 2017. I’m still on steroids but trying to get off. I’m also on mycophenalic acid and just started rituximab infusions. Praying that something works well! I’m 75 and all this is no fun!
I hope some other members will check in. @donnyboy is also new to Mayo Connect and Clippers.
Also what you want to do is use the @ before a member’s avatar. This way it alerts the member thru email that there is a message. Just like I did with your name at the beginning of this message. Glad you joined us! Is there anything I can answer(not that I know a whole lot!)
Replies to "@suec147. Hi, Sue. I’m Becky and I started this discussion. I also have Clippers, diagnosed in..."
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@suec147 @becsbuddy
Sue, I'm Don and am glad to see you join the discussions about Clippers. I am also on steroids, 20 mg/day now, and trying to find the right level of steroids as I've had several changes that haven't been associated with good results. Just got over 10-12 days of really bad hiccups, some days 24x7. What I suggest for you is to tell us more about your status with treatment and how it is going. I need to break for today but will look to hear more from you. It isn't easy figuring out how to use Mayo Clinic Connect, but it is worth making the effort. I need to improve on this as well!