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Frustrated and Confused re Eating with CKD3

Kidney & Bladder | Last Active: Jun 5 11:14am | Replies (15)

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@gingerw

@nscappa I was first made aware of lowering eGFR values about 20 years ago. I immediately went on a renal diet, even though my doctor said that wasn't necessary. In 2015 they finally came up with the cause of my CKD, which is an ultra-rare disorder. I truly believe that keeping to watchful eating helped me keep that value up for as long as it did. In Sept 2022 I started dialysis at 14% eGFR, and continue on it today.

As @cehunt Cheryl mentioned, those things that we need to watch for are definitely "eating for the labs". I have blood taken twice a month, once from the PD clinic, another from my oncology team. I keep a spreadsheet to help track everything; it includes the date and where the labwork was pulled. For me, good protein is a must, as dialysis seems to deplete it faster. If you have access to a renal dietician, ask for the optimal values for you.

You got this! And, we are here with you.
Ginger

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Replies to "@nscappa I was first made aware of lowering eGFR values about 20 years ago. I immediately..."

Ginger, I am so sorry to hear that you are dealing with dialysis, it must be so difficult for you. You are always to gracious to me with all your information which I so appreciate. Sometimes I wish I could have my bloodwork done every three months, but I know that will not happen. It's tough waiting for 6 months to see where your GFR number stands. I have a couple replies so I will see what they mention.
TTFN (Ta Ta for now) : )