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Frustrated and Confused re Eating with CKD3
Kidney & Bladder | Last Active: Jun 5 11:14am | Replies (15)Comment receiving replies
I too have CKD. My nephrologist says it is stage 4. The GFR has bounced between 14 - 42 since around 2011. It is currently in the low 30’s. @gingerw is a pro! She would be the first to say that the overall trend of the GFR is more important than any one lab test result.
Regarding eating, there are some things to be aware of and keep an eye on. These are tested in renal panel labs and include things like sodium, potassium, calcium, phosphorus, protein ….. My nephrologist reviews these labs and sets ranges that I should stay within. He says that I should “eat for the labs”. A renal dietician can identify the foods, values and portions that are relevant to those ranges. I am also diabetic so I have to consider requirements for that too. I was blessed to find a provider with renal and diabetes expertise plus she respected my personal likes and dislikes to help me customize an eating plan to meet my needs.
There is a longtime Mayo Clinic Connect member @kamama94 who also has CKD and diabetes, has been on dialysis, is a retired nurse I believe and retooled a bunch of recipes to make them kidney friendly. She also created quite a few more and put them into a book that she shared with Mayo Clinic Connect.
https://cdn.prod-carehubs.net/n1/748e8fe697af5de8/uploads/2021/04/DIABETIC-AND-RENAL-FRIENDLY-VEGAN-AND-NATIVE-AMERICAN-RECIPES.pdf
https://cdn.prod-carehubs.net/n1/748e8fe697af5de8/uploads/2021/04/draft-without-sample-meals-DIABETIC-AND-RENAL-FRIENDLY-VEGETARIAN-2.pdf
Replies to "I too have CKD. My nephrologist says it is stage 4. The GFR has bounced between..."
I just now saw your comments. You are dealing with quite a lot and I really hope for the best for you. Unfortunately, the links didn't work but I would like to see a dietician because I have so many questions even now. I was diagnosed about 3 years ago and for the first year I was not told that I had kidney disease. I saw it on my after-visit summary. I guess GP's don't get too excited about it. Really! You are spot on re Ginger, she is just great and so caring. This site is wonderful and I truly appreciate all of the great comments that I get. Thanks to all of you!
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Thanks for mentioning the recipes. Please do caution everyone that some - if not many - of the nutritional values shown in my recipes may be out of date since manufactures frequently change amounts of such things in their products so ALWAYS read labels before purchasing/using.
I was less fortunate than some in that the so-called dietitians in my area didn't know much about renal diets so I had to come up with my own. I revise the recipes stored on my computer almost daily due to the constant changes by producers and manufacturers but I cannot access the pdfs or documents online at Connect so it's doubly important for people to check the amounts in the recipes against newer amounts on product labels.