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Ehlers Danlos Syndrome, MCAS, POTS, and MALS

Bones, Joints & Muscles | Last Active: Jun 12 9:01pm | Replies (46)
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@maj7499

Mayo Clinic in Jacksonville, Florida has an EDS specialty clinic! My daughter just set up her appointments. She received inaccurate information when calling Mayo Clinic in Rochester telling her that Jacksonville EDS clinic wasn't available any more when actually it has grown. For appointments or more information, call 904-953-0869 or the Ehlers-Danlos Syndrome Clinic in Florida appointment office at 904-944-3149 8 a.m. to 5 p.m. Eastern time, Monday through Friday or complete an online appointment request form.

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Replies to "Mayo Clinic in Jacksonville, Florida has an EDS specialty clinic! My daughter just set up her..."
Colleen Young, Connect Director | @colleenyoung | Jun 2 9:37pm

@maj7499, you're right that the EDS Specialty Clinic at Mayo Clinic in Florida exists and is growing. I will look into the info that Rochester is sharing.

You may also wish to follow their blog here written by Dr. Knight and team:
- Ehlers-Danlos Syndrome Blog https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/

I'm thankful that your daughter's appointments have been scheduled. Will you be accompanying her?

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