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Anyone have discomfort or pain when tapering off prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 22 7:45pm | Replies (144)
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@tuckerp

your Dr must be concerned enough with your inability to taper that he/she plans to throw the book at it. Put you on an immune blocker as well as a PMR drug. This should totally overload your system to prevent flare ups. Dr probably then plans to wean you off the other drugs. None of this helps if you can not get your Pituitary to start cortisol. At that point they just leave you on a low dose such as hydrocortisone and treat all your other symptoms. Like diabetes, high BP, cholesterol, osteoporosis on and on.

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Replies to "your Dr must be concerned enough with your inability to taper that he/she plans to throw..."
marymckeith | @marymckeith | Jun 2 4:40pm

I hope someone can help me. I can't see my doctor for three weeks. I am on 5 mg of prednisone and experiencing EXTREME weakness. The magnitude of it scares me. I want to get off Prednisone so I don't want to up dose but in the meantime I am turning into a vegetable. I don’t want to live like this. My life is essentially over. I have been to the emergency room and everything checks out except slight dehydration and should eat more. What should I do? Decrease prednisone to get adrenals working again and face consequences. I know all about cortisol levels and adrenals. This horrible debilitating weakness is ruining my life. I don't look sick but am really suffering as I don't know what to do.

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