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Frustrated and Confused re Eating with CKD3

Kidney & Bladder | Last Active: Jun 5 11:14am | Replies (15)

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@nscappa

Hi Ginger,

I wasn't aware how long you have had CKD. You must be a pro by now. I'm concerned about the amount of portions. I love beans, some potatoes (small red ones which I bake), fish (only one piece), spinach lately (too much potassium?). I love it with eggs. I know it is recommended to use just the egg whites, I will need 70 eggs just to get enough to make an omelet. : ) I'm frustrated. You are very strict so you must be keeping your GFR results good. My last one was 48 which I wish were higher. My neph. now has me on a pill I guess to help absorption. I'm afraid I'm eating too much of things. My omelets (which I love) are not what you would call small. I eat peas, oatmeal (probably a no-no) the one with high fiber. Coffee, maybe 2 cups a day and I am trying to up my water intake to 60 oz. but sometimes it's a bit tough. I read beats are good for you, tofu, yogurt (is flavoring okay), some popcorn. Thanks for your timely reply I trust everything that you tell me. I will wait and see if I get any more replies. For breakfast I usually just have 1 piece of Tuscan Pane bread (200 mgs. of salt) with smart balance. I will persevere. : )

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Replies to "Hi Ginger, I wasn't aware how long you have had CKD. You must be a pro..."

@nscappa I was first made aware of lowering eGFR values about 20 years ago. I immediately went on a renal diet, even though my doctor said that wasn't necessary. In 2015 they finally came up with the cause of my CKD, which is an ultra-rare disorder. I truly believe that keeping to watchful eating helped me keep that value up for as long as it did. In Sept 2022 I started dialysis at 14% eGFR, and continue on it today.

As @cehunt Cheryl mentioned, those things that we need to watch for are definitely "eating for the labs". I have blood taken twice a month, once from the PD clinic, another from my oncology team. I keep a spreadsheet to help track everything; it includes the date and where the labwork was pulled. For me, good protein is a must, as dialysis seems to deplete it faster. If you have access to a renal dietician, ask for the optimal values for you.

You got this! And, we are here with you.
Ginger