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Anyone have discomfort or pain when tapering off prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: 16 hours ago | Replies (112)Comment receiving replies
I haven’t weighed in for a while. I am over a year with PMR and tapering slowly from 30mg at the start to 1mg per day now. So far I have been fortunate and not had any discomfort until recently. I have noticed some muscle/joint acing in my hip, but not even close to what I was experiencing with full on PMR. My layman’s research tells me that this is normal as my adrenal system is trying to right itself. I am wondering if this actually is normal and how long will I have joint “discomfort”? I am continuing to walk 3-4 miles 5 days a week, yoga 2x per week and personal training 2x per week, plus golf when I can fit it in. At 77 could some of my achiness also be due to aging 😩? This week I begin 1mg prednisone every other day for two weeks then discontinue the prednisone! Any info from my PMR tribe would be welcome. I will keep you posted on my progress, as it were. Carpe Diem, Liz Ward (PMR since February, 2023)
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I dont remember the thread. I have only been on here for a couple of weeks. But a pretty lengthy discussion of over 70 "will it ever be the same". We all seem to have been fairly or some extensively active prior to PMR. Your example shows a continued desire to be "where you were". The steroid did trick us into being somewhat normal. However, the overwhelming response was life after PMR does not appear to be quite as responsive. Few aches and pains. Everyone did agree as time goes on they did improve. This group was also off of prednisone. Your almost there but not quite. Any amount makes a difference. It took several weeks for me to feel "normal" but we all agreed it is a new normal. As some said. First time you have been 77 also. For me 72.