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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 4 hours ago | Replies (556)
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@bharty615

i have pv and was told that a bone marroe transplant would not be good for me it would kill me.

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Replies to "i have pv and was told that a bone marroe transplant would not be good for..."
Lori, Volunteer Mentor | @loribmt | Jun 2 8:07am

Hi @bharty615 Generally, a bone marrow transplant is reserved for extreme conditions such as leukemia, MDS,
Sickle Cell Anemia, MS, certain autoimmune diseases, etc., for when a patient has run out of other treatment options.

In your case of polycythemia vera, there are several, much easier and less risky options, such as a phlebotomy when needed and medications such as Hydroxyurea, aspirin, anagrelide, Interferon drugs~Besremi or Intron-A, busulfan (Myleran), imatinib (Gleevec), and ruxolitinib (Jakafi).

What treatments has your doctor suggested to keep your PV under control?

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