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Merkel Cell Carcinoma: I'd like to hear from others
Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)Comment receiving replies
I was diagnosed with MCC 2+ years ago in my R forearm. Tumor removed, all was good. Petscan was clear. January of this year BANG ! TUMOR via lymphnodes R Axillary. 36 rounds of radiation, again all was right with testing. No signs of the cancer. 2 weeks ago MMCC has advanced to my pancreas and some weird lymphnodes in the core of my body that they say can't be checked as they can't get to them via needle biopsy. My tumor DNA bloodwork has gone crazy high.
Has anyone ever been treated with Keytruda and how did it effect you. I start treatments on Monday, every 3 weeks. A bit nervous but hopeful. Would love to here any other experiences with this treatment. Best wishes for all.
Replies to "I was diagnosed with MCC 2+ years ago in my R forearm. Tumor removed, all was..."
My husband is on Avelumab immune therapy ...what it is called in Canada ...I believe it is the same as Keytruda. My husband receives treatment every 2nd week. He is doing really well on it ....he gets fatigue, and some stomach nerve issues where he 12.7 tumor in thoracic region around the aorta ....I hope you are ok on the keytruda ....it seems to be working well for him so far
Keytruda is an immune therapy ....My husband is MMCC and on Avelumab (Bovencia) or some spelling like that .....he is doing well ....he too had it in the thoracic region wrapped around the ascending aorta ...and was 12.7 cm ....and after 3 months of avelumab ....it shrunk to 5.4 cm ....huge difference ....all the best
I had surgery to remove a MCC on my left forearm last month -- it was the size of a golf ball.
How large was your original tumor? How large a margin was removed?
My golf ball size tumor was removed along with a chunk -- 6"x3". Luckily - it was above the muscle so it basically looks like a shark bite taken on forearm / bicep.
Best wishes with Keytruda ... I'll keep up with your story.
- Theresa
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Hello @penlandr1,
I see that you are interested to hear from others who have been treated with Keytruda. In a post above, @lenny48ca, mentions Keytruda. Here is a link to his post on May 20, discussing this: https://connect.mayoclinic.org/comment/1071523/.
Feel free to read his post and then ask him questions about his treatment.
You said that you were going to start Keytruda on Monday for three weeks. Will you be having the treatments every day?