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Anyone have discomfort or pain when tapering off prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 22 7:45pm | Replies (144)
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@cganl

I couldn’t get below 7.5 continued to taper from 5 to 1 overv10 months then finally after almost 2 yrs stopped . My pelvic girdle issue resolved but still have pain myalgia, tendinitis, and arthralgia could just be adrenals slow to wake up . Trying Tylenol. Morning is the worst

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Replies to "I couldn’t get below 7.5 continued to taper from 5 to 1 overv10 months then finally..."
abbeyc | @abbeyc | Jun 1 12:25pm

Hi. What do you mean by after 2 years you stopped? Stopped what? Are you still on Prednisone?

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lizward46 | @lizward46 | Jun 2 10:02am

I haven’t weighed in for a while. I am over a year with PMR and tapering slowly from 30mg at the start to 1mg per day now. So far I have been fortunate and not had any discomfort until recently. I have noticed some muscle/joint acing in my hip, but not even close to what I was experiencing with full on PMR. My layman’s research tells me that this is normal as my adrenal system is trying to right itself. I am wondering if this actually is normal and how long will I have joint “discomfort”? I am continuing to walk 3-4 miles 5 days a week, yoga 2x per week and personal training 2x per week, plus golf when I can fit it in. At 77 could some of my achiness also be due to aging 😩? This week I begin 1mg prednisone every other day for two weeks then discontinue the prednisone! Any info from my PMR tribe would be welcome. I will keep you posted on my progress, as it were. Carpe Diem, Liz Ward (PMR since February, 2023)

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