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Pituitary Macroadenoma-Operate or Wait?

Brain Tumor | Last Active: Aug 5 1:19pm | Replies (9)

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@kc2

Underwent FIVE (5) TSS (Transsphenoidal Excision of Pit. Tumor) surgeries - if this is best course of action for you, then do it. I had absolute faith in my surgeon but the last surgery 2017 ( I flew in a plane 3 days post-surgery) and got the things feared: CSF Leaks, meningitis and a pulmonary embolism.
I have a very aggressive tumor that two Radiations (2006 and 2019) cant stop from growing...and now the last resort --- TEMOZOLOMIDE . I'd be anxious to communicate with anyone going through chemo with this drug. I'd be happy to share any and all experiences (past and future) about AP's.

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Replies to "Underwent FIVE (5) TSS (Transsphenoidal Excision of Pit. Tumor) surgeries - if this is best course..."

@kc2, thank you for your willingness to share your experiences. If you wish to connect with others on temozolomide (Temodar), you can post to one of these related discussions:
https://connect.mayoclinic.org/search/discussions/?search=Temodar
How are you doing on the treatment so far?