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How are the super long-haulers doing 3 to 4 years out?
Post-COVID Recovery & COVID-19 | Last Active: 4 hours ago | Replies (37)Comment receiving replies
I joined the Long Haul group complements of my Moderna Booster in November 2021. The only time I tested positive for COVID was July 2022 and my symptoms were 'bad cold' like. Can't believe it's been that long. Figuratively speaking I have seen every type of specialist in the Charleston, SC area and in September 2023 went to Mayo Rochester. Their main scheme for addressing LC is moderation. There are many elements to their scheme but moderation is one of them. I would list great sleep as another element, I use my Apple Watch and a couple of apps that provide sleep quality data. Today I feel better, but I do not feel as well as I did pre booster. I journal and reflect to help guide and when I crash (because I still step over my personal 'moderation line') I do suffer more intense symptoms which for me are PEM and Exercise Intolerance. Pre booster I was exercising 45 minutes aerobic elliptical and resistance, 6 days per week. Today I am back to 10 minutes elliptical and 10 minutes resistance every other day. I am grateful for what I have learned and the help I have received along the way and hopeful that with time I feel even better.
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Sorry to hear the booster vaccine made your symptoms a lot worse. I did not respond to the vaccine or booster well either. It stinks because vaccines are so important for the general population, especially since COVID-19 and/or its after-effects are way worse than any side effects from the vaccine (don't we know it!). But in a long-COVID patient, our immune systems aren't working properly and thus don't always respond properly to the vaccine. For me, symptoms went back to status quo about 4 to 5 months after each vaccine. And I won't get any additional vaccines till I am recovered. I hope you'll get back to your baseline soon, even though a long-COVID baseline is still hard to cope with.