Newly diagnosed and looking for info

Posted by babbsjoy @babbsjoy, May 13 2:13pm

I am 62 years old and newly diagnosed with osteoporosis in my spine and osteopenia elsewhere. I am undergoing tests for underlying causes and meet with my doctor again early July. X-rays show no fractures but a lot of wear! I am taking Citracel max plus as per bottle directions, weights for arms numerous times a day, and do 1.5 to 2 miles on an elliptical machine daily. The doctor will make med recommendation in July (I think she is leaning towards injection like Forteo).

I meet with a nutritionist tomorrow. Any suggestions for what I should ask (I’d like to know about magnesium and k2 and what foods to eat or not eat, and timing for absorption). Also, any suggestions for med approaches/questions? My Dexa for spine was -3.6…..

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@bluebonnet242

@windyshores if using Tymlos for more than 30 days, I believe you mentioned it could be used for 5 extra days, where do you get the extra needles and which brand and size? Thank you.

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My endo prescribed them at the local pharmacy, and they are also available on Amazon. The specialty pharmacy that sent the needles with the Tymlos wanted me to use the same exact needles but I did sometimes use smaller ones.

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@babbsjoy

I have continued to read through topics on this wonderful site—and all the great info offered has helped with my posted questions. So much to take in! Thank you so much to all of you who get on here and help people. It is so encouraging! Blessings to you all.

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Amazing you are doing so much and preparing so well! Good luck in July. I have almost the same profile and regimen 🙂 I wanted to share that I was advised to switch from an elliptical (which I loved and used for years ) to walking on a treadmill or outside as the elliptical is good for cardio but provides “no”bone benefit. I followed this advise and very happy I have. OP journeys are so personal with decisions on what meds we chose or not, diet, exercise, supplements and more - so do what feels right for you and your medical team. There is no secret sauce but this forum is amazing for education and learning from the experiences of others.

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@esb13

Amazing you are doing so much and preparing so well! Good luck in July. I have almost the same profile and regimen 🙂 I wanted to share that I was advised to switch from an elliptical (which I loved and used for years ) to walking on a treadmill or outside as the elliptical is good for cardio but provides “no”bone benefit. I followed this advise and very happy I have. OP journeys are so personal with decisions on what meds we chose or not, diet, exercise, supplements and more - so do what feels right for you and your medical team. There is no secret sauce but this forum is amazing for education and learning from the experiences of others.

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Esb13, Thank you for the advice! I did switch to brisk walking for 45minutes to 1 hour almost daily. I live in a very hot southern climate, so if I don’t get out early AM right when the sun is rising, it’s a no go! Physical therapy has done a lot to “free up” my upper back and we work on balance.

This site has been so amazing! It’s really hard to get clear direction on this like supplements—so these discussions really help! I am really hoping the doc I see in July recommends Forteo or Tymlos (and that insurance will cooperate!)—we will see! Blessings to you and thank you for caring enough to message. I pray you have wonderful results from all you are doing!

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@babbsjoy

Esb13, Thank you for the advice! I did switch to brisk walking for 45minutes to 1 hour almost daily. I live in a very hot southern climate, so if I don’t get out early AM right when the sun is rising, it’s a no go! Physical therapy has done a lot to “free up” my upper back and we work on balance.

This site has been so amazing! It’s really hard to get clear direction on this like supplements—so these discussions really help! I am really hoping the doc I see in July recommends Forteo or Tymlos (and that insurance will cooperate!)—we will see! Blessings to you and thank you for caring enough to message. I pray you have wonderful results from all you are doing!

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(Oops, typo. I meant that it’s really hard to get clear direction on THINGS like supplements, not hard to get direction on this site! Not sure if there is a way to go back and edit my own reply—yikes!)

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@babbsjoy

Esb13, Thank you for the advice! I did switch to brisk walking for 45minutes to 1 hour almost daily. I live in a very hot southern climate, so if I don’t get out early AM right when the sun is rising, it’s a no go! Physical therapy has done a lot to “free up” my upper back and we work on balance.

This site has been so amazing! It’s really hard to get clear direction on this like supplements—so these discussions really help! I am really hoping the doc I see in July recommends Forteo or Tymlos (and that insurance will cooperate!)—we will see! Blessings to you and thank you for caring enough to message. I pray you have wonderful results from all you are doing!

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You can check your insurance to see which med they cover before you see your doctor. Mine only covered Tymlos. My doctor prescribed it but my doctor had to appeal it twice to get it covered. I have employer insurance, not Medicare. If for some reason your insurance denies you, make sure doctor appeals it.

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@bluebonnet242

You can check your insurance to see which med they cover before you see your doctor. Mine only covered Tymlos. My doctor prescribed it but my doctor had to appeal it twice to get it covered. I have employer insurance, not Medicare. If for some reason your insurance denies you, make sure doctor appeals it.

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Thank you for that valuable advice! We, too, are on employer insurance and I will definitely call to see what is covered prior to doctor meeting—that way I can have that appeal discussion with the doc if necessary, on a more timely basis!

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@babbsjoy

Thank you for that valuable advice! We, too, are on employer insurance and I will definitely call to see what is covered prior to doctor meeting—that way I can have that appeal discussion with the doc if necessary, on a more timely basis!

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It just blows my mind that Medicare and insurance companies dictate—over doctors recommendations—the quality and type of care we can receive.

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@hardingv

Another site suggested the following article for info on nutrition:
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If you want to really dig into anti-nutrients in foods, a good, evidence-based narrative review was published in 2020. It goes into detail about how to prepare foods to lower amounts of these compounds: Petroski W, Minich DM. Is There Such a Thing as "Anti-Nutrients"? A Narrative Review of Perceived Problematic Plant Compounds. Nutrients. 2020 Sep 24;12(10):2929. doi: 10.3390/nu12102929. PMID: 32987890; PMCID: PMC7600777.

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This is very interesting information. I’ve been worrying about anti-nutrients and adequate absorption of minerals. I’m also hypothyroid. Thank you!

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@babbsjoy

It just blows my mind that Medicare and insurance companies dictate—over doctors recommendations—the quality and type of care we can receive.

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I didn’t know any of this about Medicare and other insurance. Thank you for alerting me as I know we have to advocate for ourselves. I have an appointment with my primary care physician next week to review my latest DEXA and I really appreciate all this good information as I want to be prepared. I know she will refer me to specialist. Should I push for endocrinologist? I am already hypothyroid. I can’t really see from the research I’ve done online looking at reviews and physician descriptions that any of the specialists around here who deal with osteoporosis would consider anything but pharmaceuticals. I wish I could find more specialists within our healthcare who have more of an integrative approach. Sadly, in Florida it’s hard to find these people or at least where I live. If there’s anyone out there in Tampa Bay Area (I’m in St. Pete) who has recommendations for osteoporosis specialists please let me know! Thank you again for all this good information. What a wonderful group!

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@bluebonnet242

You can check your insurance to see which med they cover before you see your doctor. Mine only covered Tymlos. My doctor prescribed it but my doctor had to appeal it twice to get it covered. I have employer insurance, not Medicare. If for some reason your insurance denies you, make sure doctor appeals it.

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I would prefer Tymlos due to its ability to build bone. What rationale did your doctor use to appeal? Thank you.

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