Today was day 52 after transplant and i got to talk with the Doctor. Overall, he said i am doing well. Most numbers in my blood were consistently good although the white cells and those numbers did not come in yet. I asked him about some of the meds and asked how long i need to take Mephron. He said it would switch me to pills. Bactrim! He said for this drug, plenty of water is necessary, as the drug can affect the kidney.
Taken on Saturday and Sunday only. It has side effects of course, so i will see how those may happen if at all.
He read the report i saw in my portal that says i am 100% male. For now, he said, as we are only on day 52 and the body still can make different choices. He said as for HVGD disease, 40% of people with BTS have some sort of side effects. He then insisted I not go to the internet to look up all the symptoms. Not to send unnecessary worries through my head on what I may get. He also added that these side effect do not necessary end in 100, 180 or 2 years. It is always possible to have side effects. We just need to keep them informed.

I will say i have looked up MDS and read a number of posts on this site. I know from the bottom of my heart that I cannot predict what my body is going to do. I do know I felt a little nausea so a took a Zofran this morning.

I love reading abbout others who have supportive spouses who are able to assist. Not all of us do, but wish we did, so we find others. I have said I have 2 caregivers. My main one cannot cook at all. Oh my. I am making all my favorites as best i can from my WW app. Beans, veggies, fruit and whole grains. I have found through both cancer treatments that sourdough bread tastes the best. With or without butter. We find what works for us and we make it happen. Soon enough, I will be back in my own home.

I honestly say to myself every day that I AM A BONE MARROW TRANSPLANT PATIENT! Today I told the 3 nurses near the station, that i need to tell myself this is not the breast cancer. My body shows me that part of my health journey is over. Easier recovery without a doubt. This path has a much longer track for healing.
My supervisor is finally talking to the HR director Monday. I contacted her on May 6th. Most of my vacation hours are now used and I do not have Disability. I am not letting this bug me. I will take the laptop to my dr visits and do work while I am there. I have learned every seeming roadblock has a way to get around it. It is not always easy, but it is possible.
Grateful to be 52 days into it.