← Return to Doctors' confusion over diagnosis: Questions they should ask

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@dadcue

Do you want me to separate out PMR symptoms from everything else? What I remember most was the shoulder pain because it was unlike anything I had ever experienced up until then. Plenty of generalized pain and stiffness so it wasn't shoulder pain only.

Reactive arthritis flares didn't involve shoulder pain. I had pain in other places but never my shoulders. I had many flares of reactive arthritis which I treated with prednisone that was prescribed for uveitis. Most of the time the reactive arthritis flares came with a flare of uveitis so my ophthalmoloist prescribed the prednisone. When I had reactive arthritis pain without uveitis, I self medicated with prednisone leftover from the previous flares of uveitis. I didn't think a rheumatologist was necessary and never saw one.

My prednisone prescriptions were written for uveitis until PMR was diagnosed. My ophthalmologist didn't want me to run out of prednisone whenever I had a flare of uveitis which recurred every year or so. I only needed to take a burst of high dose prednisone for a short period of time. I did these bursts of high dose prednisone followed by a fast taper off prednisone countless times. Uveitis responded quickly and stayed in remission until it flared up again about a year later. Reactive arthritis flares responded in the same way.

With the onset of PMR my prednisone use changed from intermittent use to chronic daily use of prednisone. The shoulder pain didn't go away for a long time. It responded to my daily Prednisone dose but the pain would return the next day.

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Replies to "Do you want me to separate out PMR symptoms from everything else? What I remember most..."

Have you experienced new PMR symptoms? I was wondering your thoughts of how you would treat a new PMR "flare". I have used your thought process for the Uveitis. But I appear to be having to experiment with how my body reacts to the treatment. Not a one size fits. I used 20mg start as something similar to a standard starting dose of around 15mg. Maybe 5 days is not long enough. (in some flares) Maybe 7-10 days. That should still be inside the cortisol withdrawal window.