← Return to Prednisone for over a year along with Kevzara for last 5 months

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@jfannarbor

The rheumatologist I am going to now thinks that I do not have PMR but spondylo arthritis. I have been put on hydroxychloroquine and when that didn't work sulfasalazine. I had to have a failed root canal tooth extracted and took Tylenol 1000 mg for pain 3X/day The Tylenol solved a lot of problems. I am wondering what is my diagnosis? I have been searching the Internet and think I have myositis. It is not common, but the symptoms seem to fit.

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Replies to "The rheumatologist I am going to now thinks that I do not have PMR but spondylo..."

I took prednisone for about six months for PMR, (my blood test for PMR was 69.9! Normal is 7.4. ) , relief, yes, had a bone density test, not good. Was lightheaded and dizzy all the time.

Tapered myself off prednisone….from the start 15 to 1 …took a couple of months.

Tried several OTC things I heard or read about, worked for about a week, then pain comes back and was excruciating.

A friend told me she takes Tylenol an Ibuprofen daily ….i do now every six hours. Not completely pain free but my days are much better.

Nights are tough. Pain comes back after six hours but, much more doable than before.