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MAC & Bronchiectasis | Last Active: Jun 4 8:41pm | Replies (13)

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@gigiv

I was diagnosed with Aspergillus in fall 2022, along with MAC and pseudomonas and BE. They put me on antifungal (i think it was clotrimazole, but not 100% sure, I am terrible with names) for 3 months and it eradicated it: the bronchoscopy 1 year later showed NO fungi of any sort. The 1st month of treatment was hard for me because my doc had told me he didn't think I had asthma and that I should stop taking Advair. Restoring Advair after one month eliminated side-effects, the last 2 months of treatment were easy and very effective. My SpO2 went from 93 to 98. They also gave me Budesonide to nebulize during treatment. It probably helped too. Pseudomonas were treated during dec 2023 via IV antibiotic and cipro. I started Azithromycin and Rifampin for MAC but could not tolerate them so I stopped. Switched doctor, the new one put me on airway clearance with 3% and acapella. This is helping a lot.

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Replies to "I was diagnosed with Aspergillus in fall 2022, along with MAC and pseudomonas and BE. They..."

Thank you. When something new comes up I panic then I just adjust to whatever I have to. Hopefully I will talk to my pulmonologist today ( again Friday) and she will decide what to do and decide smart because she is always cautious- good or bad? So there is hope. Strange thing is that resp culture did not show pseudomonas second time in two months( sleep I guess because they don’t disappear)